Are parents' views about their child's treatment for juvenile idiopathic arthritis (JIA) related to evaluations of their child's quality of life (QoL)? – SPARKS CHARM study
نویسندگان
چکیده
Methods Mothers or fathers of 143 children aged ≥ 5 with JIA, completed questionnaires about general beliefs regarding treatment (Treatment Representations Inventory, subscales – treatment value, concerns, cure and decision satisfaction) and specific beliefs regarding benefits and difficulties in taking MTX. Core outcome variables (COV), except ESR, were used to provide information on disease severity. Data were analysed by correlations followed by multiple linear regression with QoL, assessed by the Child Health Questionnaire (CHQ), as the dependent variable.
منابع مشابه
Is parental coping associated with quality of life in juvenile idiopathic arthritis?
Parents of children with a chronic condition such as juvenile arthritis must cope with greater demands than those living with a healthy child. They must adopt different behaviours in order to lessen the impact on the family structure. Parental coping refers to the parent's specific cognitive and behavioural efforts to reduce or manage a demand on the family system. The aims of this study were: ...
متن کاملHealth-related quality of life in children with juvenile idiopathic arthritis – child’s and parent’s point of view
OBJECTIVES To assess the quality of life (QoL) of children suffering from juvenile idiopathic arthritis (JIA) in Poland, to compare QoL of children with JIA and healthy children, and to compare children's and parents' assessments of QoL. MATERIAL AND METHODS The KIDSCREEN-52 questionnaire (children's and parents' version) was used to assess the quality of life. The QoL in JIA patients and hea...
متن کاملHealth-related quality of life among Swedish children with Juvenile Idiopathic Arthritis: parent–child discrepancies, gender differences and comparison with a European cohort
BACKGROUND This study investigates gender differences in self-reports and between parent and child reports in Health-related Quality of Life (HRQOL), measured with disease-specific and generic instruments for chronic disease. Comparison of HRQOL results in this Juvenile Idiopathic Arthritis (JIA) sample to a European cohort of children with JIA and one of children with other health conditions a...
متن کاملPsychological Profile in Children and Adolescents with Severe Course Juvenile Idiopathic Arthritis
OBJECTIVE Juvenile Idiopathic Arthritis (JIA) is the most common chronic pediatric rheumatic disease. It is recognized that only reliance on clinical signs of disease outcome is inadequate for understanding the impact of illness and its treatment on child's life and functioning. There is a need for a multidisciplinary and holistic approach to children with arthritis which considers both physica...
متن کاملAssessment of Health Related Quality of Life (HRQL) in Egyptian Children with Rheumatic Diseases; Its Relation to Disease Activity and Functional Disability
Background Many pediatric rheumatic diseases persist into adulthood, with negative squeal from the disease or its treatment. We aimed to assess health related quality of life in a group of children with rheumatic diseases and its relation to disease activity and functional disability. Materials and Methods Fifty one patients were divided into three groups: Group 1 includes 27 patients diagnose...
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عنوان ژورنال:
دوره 6 شماره
صفحات -
تاریخ انتشار 2008